Feeling helpless.

Ohhhhhhhh my gosh, I am exhausted. Today was SUCH a hard day with my boy. It’s been a long time since we’ve had such a trying day, and I really can’t remember the last time I saw Pablo struggle so hard against the environment around him. All day long, he’s been on edge. One of the things that keeps setting him off is these damned Legos! He’s trying to build a (kickass, amazing) Lego house and he’s having trouble with it. This is always a challenge, but it seems WAY worse today.

By dinnertime he was so full of rage, we barely got through our meal. And the hours between dinner and bedtime pretty much sucked a fat one for the whole family. Pablo sobbed and wailed and screamed and yelled at people. He calmed down briefly when I held him closely under a blanket on the couch, cupping my hands over his ears. I actually broke out the melatonin toward bedtime, hoping to calm his mind down a little bit. He did end up falling asleep pretty quickly, and I’m praying he sleeps well tonight.

He might be getting sick, or he might be just ready to go back to school after being off track for the past three weeks. I suspect he’s going through some brain growth stage at the moment. These “growth spurts” are hell for all of us, especially Pablo – but they always come before some huge breakthrough. We’ve seen it time and time again. I sure hope that’s what this is. I hate seeing my precious boy struggle so much to just get through a normal, typical day.

Loving Lampposts – AMAZING film about autism!

Paul and I had a chance to watch an amazing new film about autism – it’s called Loving Lampposts and it will be available for download on iTunes tomorrow (Tuesday) – you should GET IT if you’re at all interested in understanding what it’s really like to parent a child with autism. If you don’t do the iTunes thing, you can preorder it on DVD at http://store.cinemalibrestore.com/lovinglamppostsdvd.html.

The film was made by Todd Drezner, who has a son with autism, and the title refers to his son’s love of lampposts. As the film begins, you see Drezner’s son visiting the park, and greeting the lampposts (my traffic engineer husband would insist that I call them luminaires) with hugs and giggles. Throughout the film, many theories and controversies surrounding autism are explored.

“As autism has exploded into the public consciousness over the last 20 years, two opposing questions have been asked about the condition fueling the debate: is it a devastating sickness to be cured or is it a variation of the human brain – just a different way to be human? LOVING LAMPPOSTS: LIVING AUTISTIC takes a look at two movements: the “recovery movement,” which views autism as a tragic epidemic brought on by environmental toxins, and the “neurodiversity movement,” which argues that autism should be accepted and that autistic people should be supported. After his son’s diagnosis, filmmaker Todd Drezner visits the front lines of the autism wars to learn more about the debate and provide information about a condition that is still difficult to comprehend.”

Take a quick look at the trailer:

Loving Lampposts Trailer from Loving Lampposts on Vimeo.

I LOVED watching this. It echoed so many of our own conclusions and feelings about autism, and after watching it, I felt comforted in knowing that so many others are in the same boat as us, and that many adults with autism lead happy, fulfilling lives. I mean, that’s what we all want for our kids, right?

If you have the opportunity, you should totally check out this film. I’m tossing around the idea of having a movie party with popcorn and beer and inviting over all the parents we know to watch it.

South Metro Autism Moms

Hey, those of you in the Denver area – are you looking for an autism support group? There’s a group that meets once a month at a restaurant. It’s very casual; nice women, and they usually have an informative guest speaker. If you’re interested, please leave a comment here and I’ll email you the info. This is more for people living in the south metro area (from Aurora to Littleton-ish) but if you don’t mind driving, I’m sure you’d be more than welcome! Just wanted to put it out there, as the next meeting will take place next week!

Happy Autism Awareness Month!

April is Autism Awareness Month! Some thoughts about that, and about the organization Autism Speaks.

Happy Autism Awareness Month! from Laura Neiman on Vimeo.

Bendawhat? Bendawho? Bendafan!

If you weren’t aware, Pablo is a huge, HUGE fan of…FANS! He LOVES fans. Ceiling fans, box fans, but especially desktop fans that oscillate. Between the spinning and the whole mechanical thing, he just adores them. When he started kindergarten, his teacher made him a bound book called, “I Like Fans.” She made laminated pages with pictures of fans – one even had Spongebob on it! He treasured that book long after we moved and switched schools. And if we happen to be at a store or in an office where someone has a fan blowing on them, Pablo will immediately head for the fan and turn it off and on and mess with it, unless I quickly intervene. The kid is fan obsessed.

So I wasn’t surprised to see Pablo creating this fine work of art on the door of the study…
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Fish oil, fish oil, eat it up, yum!

I wanted to just make a quick notation of this, so I can refer to it later. I started giving Pablo fish oil about a week and a half ago, every day, stirred into his orange juice. So far, he doesn’t seem to notice oily bubbles floating on the surface of his juice! And I’ve noticed a marked improvement in his coping skills, especially in the area of self harming. I don’t know if I can entirely credit the fish oil with this change, but it seems noteworthy.

Since then, I’ve noticed that you can buy fish oil gummy vitamins everywhere! I just saw them at Target the other day. I’m considering giving them to ALL the kids. Who’s tried these? Are they any good?

Pretty house, huh?

A total asshole lives here.

You’d never guess that a TOTAL DICK lives here, would you?

We were parked in front of his house today, and when the kids and I were heading back to our vehicle today after school, he had just finished mowing that beautifully green lawn. His lawnmower was in the street about six inches in front of my bumper, and he was using a high pressure sprayer with his hose to clean the grass clippings off the mower. So, between the hose blocking the sidewalk, the loud FWOOOSH! of the water going everywhere, and the lawnmower itself, which he kept turning on, Pablo was a little freaked out.

I smiled at the man and asked, “Excuse me, could we just get by real quick so we can get in the car?” and he sighed heavily, turned off the hose, and motioned for us to go ahead. The hose was still draped in front of the sidewalk, though, and Pablo was freaked out by it – he was sort of fighting with me a little when I tried to grab his hand, and this guy said…

“Go! Go! What is his PROBLEM, ANYWAY?”

I said, “Actually, he doesn’t have a problem. He has autism. And he’s scared of loud noises.” The guy said, “Oh.”

Things I didn’t do, but wanted to:

  • Ask, “What is YOUR PROBLEM, YOU GIANT DOUCHE?”
  • Pick up the gas can from the lawn mower and use it to spell out “PABLO IS AWESOME” in his pretty grass
  • Mention what a great time it is to buy a house, and how he might want to consider finding one that isn’t next to an elementary school
  • Drive across his lawn as I pulled away
  • Back over that damned lawnmower in my big SUV

Things I did do:

  • Drove by his house after I picked up Kayley from school, so I could stop in the middle of the street and take a picture with my cell phone, so I could bitch about it on the internet.
  • Felt really pissed off, because these things NEVER HAPPEN TO PAUL. The kinds of people who have no trouble at all being downright cruel to a 5-year-old child and his mommy walking down the street wouldn’t say SHIT to Paul if they had a mouthful of it. Ugh. I hope that guy catches herpes from a toilet seat.
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