Have you ever heard of Reactive Airway Disease? I hadn’t either, until a year or so ago when our son got this horrific cough that wouldn’t go away. It’s basically just like asthma, except instead of being ongoing, the symptoms come and go and it’s usually triggered by a cold virus. The kids have been passing a cold bug back and forth, and it finally made its way to the boy. So, for days now, we’ve been doing round-the-clock nebulizer treatments and having him sleep in a humid room. Old hat. Easy cheesy. We’ve been doing this for a couple of years now, every time he gets sick, and it usually passes in a day or two.
Not this time! The other night, Pablo coughed literally all night long. Paul and I were up with him, worried, and I started counting the seconds between his coughs, like I was trying to find out how far away the lightning strike was from me. He was coughing on average, every twenty seconds. Poor kid! And NOTHING helped. We did the nebulizer, I buttered him up with Vicks Vaporub, we had the humidfier going on high, I even gave him the strong cough meds I usually save for emergency situations: Prescription Cheratussin with Codeine! It didn’t do a thing for my poor child.
I rattled off an email to Kaiser at about 4 in the morning, right before Pablo FINALLY stopped coughing and fell asleep. They asked us to come in promptly at nine. Paul pointed out to me that middle-of-the-night emails work WAY better than calling in and sitting on hold for half an hour!
Pablo’s oxygen level was at 90. I thought that sounded pretty good! That’s an A, right? I guess not. Even at our elevation, they wanted him to be above 96. They gave him a nebulizer treatment at the office and then informed us of the new plan: Prednisone!
We tried Prednisone a few years ago when Pablo was too frightened of the nebulizer, and it sucked ASS. It turned him into this psychotic, paranoid, hyped up little toddler. I was NOT looking forward to trying it out again, but…it seems to be doing the trick. Pablo’s still coughing here and there, but no more of that all-night-long business. And he is a bit agitated, but honestly – we’re on spring break, it’s cold as hell outside, and everyone’s sick. I’M a bit agitated!
Fingers crossed that the sun’ll come out tomoooorroooooow, the kids will get better, we can stop the steroids, and manage a trip to the museum before school starts again!
Laura, also known as LaLaGirl, is the mother of a teenager and two young sets of twins. She's happily married, loves living in Colorado, and writes almost daily about married life, raising multiples, and parenting a child with autism. In addition to playing Barbies and pretending to eat plastic food all day, Laura spends most of her time folding clean laundry, obsessing about the amount of sugar her kids eat, and vacuuming up Polly Pocket accessories. She's obsessed with Yo Gabba Gabba, red wine, and Family Guy. Questions? Just ask. Care to Subscribe by Email?
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Janelle
April 2nd, 2009 at 8:11 am
Poor guy! You know, Breanna had the same exact thing going on when she was younger. She She was actually in the hospital for five days before they diagnosed her correctly. The good news is, she has pretty much grown out of it. Every once in a great while she has to use an inhaler, only when she has a bad cold. Hang in there Supermom!
LaLaLaura
April 2nd, 2009 at 4:12 pm
Wow! I never knew that about Breanna! So happy to hear that she’s mostly outgrown it. I hope Pablo outgrows this, too! I remember being really sick the same way as a kid, but my mom SMOKED, and cigarette smoke is a huge trigger for me even today. I stopped having bronchitis every winter when she stopped smoking – until the year I lived with my sister, who smokes. Haha! But – we have no idea what the trigger is for Pablo, besides cold viruses. Nobody smokes here, we don’t have pets, etc. It’s a drag.
Terra
April 2nd, 2009 at 9:42 pm
OH, I have asthma and my youngest is suffering too. I AM SO SORRY that you have to deal with this and I will be holding out for that trip to the museum for you.
Terras last blog post..Yes it was I
Bethany
April 4th, 2009 at 4:41 pm
So interesting that you post about this, because a boy from school has RAD and I hadn’t a clue what it was! Poor little guy..hope he feels better soon!
Lisa
April 5th, 2009 at 7:06 am
I just found this blog while googling for treatments to Reactive Airway Disease. My daughter was diagnosed with it about a month ago. We were on the nebulizer w/Albuterol for about a week and it kicked the cough out. We’ve used it 3-5 times since, and then two days ago she sarted right up again almost worse. That on top of fluid in her ears for a couple of months and a realllllllly long ENT wait makes for a wonderful time.
Have you ever tried Children’s Claratin combined ? That is what was suggested to me…
Anyway, I am sorry your son is sick and I hope it kicks out soon. Hopefullly both our kids our sick. Mine leave for FL on Tuesday and it would really suck hauling the nebulizer along for her first vaca.
LaLaLaura
April 6th, 2009 at 2:05 pm
Lisa, thanks for the suggestion! I’m going to pick up some of that next time I’m out shopping – see, this is why I LOVE blogging – isn’t technology wonderful? Hope your little girl feels better before you guys take off!
Tim
April 6th, 2009 at 2:34 pm
I have had my coug now for 2 months. A month ago the doc gave me some little amber colored cough pills and antibiotics. I still have the cough, though its much better than it was. The worst part of mine is that after I cough, m air passage in my throat closes up and I can’t get a breath!!! Makes me feel like I ‘m going to suffocate for about 20 seconds and then it open up and I can breath again. I don’t get it. I’ve never had something similar to this before. Its was different than a cold or flu. What to do????
Kim
April 30th, 2009 at 9:24 am
My 22 month old son was just given a DX of reactive airway disease. We have to do pulmicort through the nebulizer once at night and then Singular with dinner. Our doctor said every night until May 31 then stop for the summer and then start up again Sept 1 through May 31 again. Last night was the first night. I will keep you posted. Good luck.
shirley
April 30th, 2009 at 4:30 pm
Don’t know if this will help the little boy coughing at night with reactive airway disease but I’ll tell you what works for me. I’ve just been diagnosed with it at 67 yrs. old and absolutely the only thing that helps me when I am coughing is eating something. For some reason cough drops and cough medicine doesn’t touch it. I also take my inhalers but during the night or even during the day when he’s coughing try getting him to eat something. I keep something to eat, like pretzels etc. next to my bed to eat when I start coughing. I also sit up and sometimes use a cough drop afterwards when I lay down. I also drink some milk which helps me get back to sleep.
Lisa
May 8th, 2009 at 3:27 am
My 22 month old son was just DX with Reactive Airway as well. It’s been his first winter at daycare so we had a rough one, starting with RSV in Dec. and one other resp. virus he was hospitalized for in Feb. Plus several colds and then this past weekend more fun with allergies. He only seems to flare up with the viruses and now it seems, seasonal allergies. We’re doing the Pulmacort (which we’ve had great luck with) once a day in the neb and liquid Claritan through Spring allergy season (Mid June). If he gets worse, up the Pulmacort to twice a day and add in the Albuterol. We’ve also had 2 or 3 rounds of short doses of Prednisone too. I’ve been devastated by the DX and worried about him, it’s nice to meet other moms that are going through the same. From what my ped says, they don’t generally diagnose children under 2 with asthma, but I’m wondering if this is in the future for him? It sounds like from what I’ve read, a lot of children grow out of this *crossing fingers*
Shana
May 9th, 2009 at 8:16 pm
Hi, just found your site by looking for info on RAD, which I do every once in awhile to see if theres anything new out there. My son is six and we’ve been dealing with this for a few years. He takes Pulmicort once a night during the winter months and it is AWESOME…we don’t need Albuterol at all when he uses it. We don’t have a problem with RAD at all when it is warm unless he gets a cold, which we’ve dealt with twice this year since he is in Kindergarten now. Drew’s triggers are cold weather, sudden temperature changes, the cold virus, and exercise (if he’s already fighting a cold). We drove from Houston,TX to Kansas last year at Christmastime. When we pulled into Oklahoma it was snowing. When Drew stepped foot out of the car…he immediately began coughing!!! We’ve learned to deal with it,and I start treating him aggressively the minute he starts coughing. Keep your nebulizer and rescue inhaler handy because you never know when you might need them!!
Dorothy Stahlnecker
May 10th, 2009 at 1:16 pm
Wow you are quite a mommy and still sane I’m impressed. So glad I found your site i read one of your comments and wonder when you sleep.
Happy mothers day.
Blessings Dorothy from grammology
grammology.com
Dorothy Stahlneckers last blog post..Mothers are amazing
Kim
May 11th, 2009 at 9:21 am
Okay, the pulmicort has made for a week of sleepless nights and miserable days. I don’t know what is worse. He wake up every night and just can’t go to sleep. I tell him it’s time to go to sleep and he closes his little eyes so tight and just can’t sleep. We tried it in the morning and then he is a bear during the day. I haven’t given it to him since thursday and he slept great. UGH! This is horrible. At least the cough hasn’t returned…yet. Waiting for a call back from the doctor.
mm
May 18th, 2009 at 12:19 am
he was exposed to something toxic/harmful at some time in his early life. Possibly pesticides believe it or not they use them on school grounds still for weeds. The city uses the along roadways and on parks lawns etc. Some people spray them in their homes for bugs ants, etc. Never uses pesticides in your home or on your property. It will become known just how bad these are for your health and the planet. they don’t go away. Don’t let him around smoking adults. No antibacterial soaps..Has TOXIC TRICLOSAN. LOOK it up. Just use simple soap and water
De-toxing is very important. Milk thistle is a very good one to learn about. great for clearing the liver which he needs to do. Chorella is also good. Get powder put in fresh OJ. Organic food only. meat with no hormones etc. or veggie is even better.
study healthy clean green living. Chemicals in lotsa stuff including new furniture and toxic fire retardants in beds and other things that children are very sensitive to. Look up fire retardants. Some children becaome very sick right away from a ew bed or memory foam which outgases toxic chemicals.
An organic bed would be best for him ( for most children) Have him checked for food allergies too.
all best
Get the book “our toxic world- a wake up call” by DR Doris Rapp MD
amber
June 19th, 2009 at 12:49 am
my son just got diagnosed with RAD he had to be life flighted to another hospital and he was on an incubator for a couple days and oxygen for a couple more. he is two..it all happened so fast. i am learning that if you have a journal to right everything down it is easier to find out there triggers. my son was on steriods two months before diagnosed now he does albuteral four times a day and inhaled steroids twice a day plus oral steroids twice a day. i never realized how fast things can go wrong . i will never think about a cough the same way again. i get worried now over the quietest cough or sneeze we still arent sure of all his triggers but i am hoping that he out grows this and it does not turn into asthma . i had asthma and so did his father so i just pray for good health everyday…
Denise
June 21st, 2009 at 7:10 pm
I found this site when Googling RAD. I think my son has it. It started with a horrible cough, then progessed to stidor coughing at night – you know, when it sounds like your child is choking and can’t get his breath? He never remembers the nighttime episodes, but they send me flying out of bed into his bedroom. The stridor (and cough) stopped after 5 days on Orapred, but it’s starting up again as of last week. We just went to the ENT Friday and he mentioned RAD, expedited us getting in to see a pediatric pulmonologist in a week or so. I have no idea what triggered the coughing – it started in mid-April, stridor started about 2 weeks later, and now we give him 5 mg of Zyrtec everynight. My son is 7, has never had any of these symptoms before. I’m so glad to find this information on this site – it sounds exactly like what we’ve been going through.
Alanna
August 7th, 2009 at 8:10 pm
My daughter has been diagnosed with RAD. Hers is usually brought on by an allergy flair. Especially in the spring and fall. It has gotten progressively better with age. I contribute that mostly to not being around smokers anymore. My mom used to keep her for me while I was at work. She was a pack a day smoker. Now my aunt keeps her. She doesn’t smoke at all. When my daughter starts having an attack, I start her on Zyrtec. Her pediatrician also has prescribed Singulair as needed. We don’t have to take it all the time though. I hate to hear about what this young boy has gone through. It is definitely scary. I didn’t realize RAD was this common. I am thankful to have a website I can go to for this type of info.
Rebecca53183
August 9th, 2009 at 12:19 am
Sorry about your son. I was just looking for info on this. I’ve actually had asthma since I was about 2. Now the last couple of years I’ve gotten to where I had been diagnosed with sinus infections and bronchitis at least every two months and once a month for the last 6. Now the dr says I have RAD also…he actually yelled at me this time because I waited two weeks to come in…my oxygen level was 89% when I saw him today…What I don’t understand is that he said my right lung is fine but my left lung according to him is really bad. Has anyone heard of just one side being affected? It just seems odd to me I would figure if one side is affected the other would be as well.
Crissy
September 18th, 2009 at 11:16 pm
My daughter is 7 and was just diagnosed with RAD.She had RSV when she was little,which was scary.Now her pediatrician prescribed liquid albuterol twice a day,but I dont think it helps her much,and when she gets sick the poor thing coughs all night long,and the promrthazine w/ codeine doesnt help her either.Im going to have to go back to her doctor and let him know the albuterol isnt working.I dont know what else will help her ???
Kat
September 27th, 2009 at 8:12 pm
My 3 year old had rsv when she was 3 months old. At 13 months she had a bad cold which ended in a bad asthma attack. That firt winter after the rsv was the worst. Attacks with every cold which was every month. I went to a great asthma specialist and was told to give her pulmicort once a day everyday throughout the cold season sept-may and xopenex 3-5 times a day at the beginning of a cold. She also was put on singulair and believe me it has worked wonders. Her last attack was last sept right before meeting this specialist. And she has had many colds. I also always have prednisone on hand in case nothing else works. Also was told vicks vapor rub is very bad for asthmatics. Makes breathing worse. It even says it on the label and on the vapor bath from johnsons label… Good luck
Gina Callaway
October 1st, 2009 at 7:54 pm
Wow.. This all sounds so familiar to our story. Our son had pneumonia at 2 1/2 when our daughter was just 10 weeks old diagnosed with our first RSV infection. Now she is just over a year and RSV season is here (in Florida it is never really gone). I think I have pinpointed her triggers to allergies and weather changes. We go again to the pediatrician tomorrow for a re-check. Currently, we are doing Pulmicort twice a day (once a day when she is not wheezing) and Xopenex 4 -5 times a day. We also take Zyrtec daily but I am wondering if it is time for Singulair and a pediatric pulminologist. Also, I am curious to know if any other parents work and have their children in daycare. I currently work part-time but fear that I may need to quit working for the next year until she is older. Any thoughts or insight from any other moms is appreciated.
Kat
October 4th, 2009 at 8:16 am
I highly recommend a asthma dr. My life has changed for the better since going to our 2nd asthma dr. My daughter still has had strep every other month and coughs and colds with no wheezing and no problems breathing. I never worried about rsv with her again. I figured the damage was done the first time. I now have a 4 1/2 month old and rsv season is right around the corner ( ny is Nov-March) I worry about her now. However if she were to get it she would be on her way to the asthma specialist right off the bat because I now know what comes with rsv…. Good luck. Singulair works wonders for my daughter….
jalene
October 5th, 2009 at 9:38 pm
my son is 3 and has all these symptoms everyone has described. i hav ebeen told by the drs he has asthma, but when he coughs he throws up mucus really nasty mucus. if he get to hot he throws up or if he get upset we have tryed steroids and singular inhalers and nebs. we r tring to get in to the pulmonologst this week hopefull that will help
Kat
October 6th, 2009 at 8:29 pm
singulair only worked with me when consistantly giving it to my daughter right before bed. Nebs work wonders for her once again if persistant and consistant. He probably is congested and vomitting mucus cause all that mucus in their stomach can cause and upset stomach. My baby is that way with throwing up it could be a reflux issue. My son is 7 and still vomits when upset or too hot and it was diagnosed as reflux from birth. I would def recommend the pulminlogist. Goo luck..
Billi
October 15th, 2009 at 7:43 pm
I have a six year old who has asthma and has since he was a baby. He has been hospitalized on several occasions over the years with his asthma. I learned the hard way when an er doctor gave him a prescription for cough medicine with codeine. He ended up in the hospital the next morning almost unable to breath. When his pediatric pulmonologist found out he was furious. Children with asthma are never to be given prescription or over the counter cough medicine as they exaccerbate their symptoms. Coughing is the way that asthmatics are able to keep themselves oxygenated. I also have an eight year old daughter with RAD. I know using preventive inhalers and nebulized solutions like pulmicort can really be a pain but in my experince it is the best way to keep them healthy and breathing. We do flovent twice a day and singulair with Claritn or Zyrtec(during the allergy season). Please ask an experinced pediatrician or pulmonologist for their opinion on using cough suppresants with asthmatics and those with RAD, but in my opinion I would steer clear of them. Good luck.
Anmar Oueja
October 27th, 2009 at 7:17 pm
We have a 5 years old who used to cough until she vomited. That was a year or so ago. Now she starts coughing at night and it sounds like she is coughing some phlegm out.
We use STODAL to control her cough in the winter months. This medicine is natural with no side effects and does help her manage and get some much needed sleep. We try and go vicks vapour rub whenever we can.
A Wright
November 2nd, 2009 at 6:32 pm
Anmar, same with my son – he would cough so much he would vomit. Thank goodness at the time I worked nights, because he was sent home from school so often (even 12 days one month!) that I definitely would have lost my job. we live in SW FLorida and same time every year (Nov) it comes until about May. Singulair is the only thing that not only wokred for him but kept him sane. He’s also on Pumitcort, though that makes him a bit jumpy. We took himoff Albuterol because he turned into a hyperactive screaming child. Laura, thank yo so much for this post! Does anyone happen to know if RAD “disqualifies” him from the H1N1 vaccine? I know children with asthma aren’t supposed to…. Anyone else thinking about this??? Thanks, Amber
Kat
November 11th, 2009 at 4:04 pm
He can def get the vaccine but only the injection not the mist. My 3 year old has asthma from RAD and just got over H1N1 and to be hinest wasnt that bad.. She never got bad at all. Good luck
Sandy
November 11th, 2009 at 8:20 pm
I found this website while search for information on RAD. My son was diagnosed in March. He had no other problems until the cold season started, and just came home two days ago from his second ER visit in two months. This time they kept him overnight for observation and gave us some more info. When he has the attacks they give him an albuterol inhaler with no refill and steroids for five days. Up until his release they gave us no info on trying to prevent these attacks from happening, I was just told that it will happen. I read some other sites, along with this blog and feel armed to go in to talk to his doctor tomorrow. Thank you so much to all of you for sharing your stories and helping families like ours seek out solutions other than ER visits.
momsey
November 27th, 2009 at 9:37 am
Found your blog when searching for information about RAD. My 17 month old son was just diagnosed with it a couple of days ago, and the doctor gave us very little info on it. (Of course, as soon as the doc left, I thought of a million questions I should have asked.) From my reading, I’m getting more and more annoyed at the fact that this is really a non-diagnosis! It doesn’t mean anything! A lot of doctors feel that the term should be abandoned altogether. A little frustrating, since my son has been wheezing for a week and a half and I still don’t really know what’s going on. *sigh*
A Wright – the pulmonologist my son saw recommended he get the H1N1 vaccine, so apparently having a diagnosis of RAD doesn’t preclude you from getting the shot.
Kat
December 1st, 2009 at 7:05 pm
Sandy, I wouldnt listen to it would happen. I would go to a pulmonologist asap and get your child on meds. Singulair and daily pulmicort treatments helped my daughter. She hasnt had an attack in 14 months and she also has h1n1.. She went through that like it was nothing. There are answers you just have to find the right drs. Never except an answer like it happens!!! These are your children no one wants to live their lives counting breaths and worrying…. Good luck
LaLaLaura
December 4th, 2009 at 9:31 am
This is why I love having a blog! I love getting all this information from other mamas, and realizing we’re not alone in this!